The day before Thanksgiving, or any other holiday for that matter, is never a good time to be admitted into the hospital. I joke that they have to pay me to be here. I can not imagine being a patient, stuck in a tiny room away from family, on a completely family oriented holiday. To make matters worse, also not being able to eat a traditional meal. Hospitals do their best to make a holiday hospitalized better. They make a turkey dinner for the patients and the staff too. It does not compare to home cooked food. The turkey is inevitably cold and entirely dry. The mashed potatoes are watery, being from flakes. The best part is usually the rolls that are decent when warmed in the microwave , and it is a real treat when you can find some butter to put on them.
Someone usually brings in decorations, and by christmas there is usually a bit of tinsel or greenery. We usually bring in wrapping paper and cover each of the pictures, adding bows if we get really creative. Sometimes there are even christmas lights on the unit. The long term facility floors, like the skilled nursing facility and the oncology floors usually will even have a tree. A local elementary school usually donates paper ornaments made by the kids as a project, and we ask the patients to help decorate. Most of them are too sick, though, and their ornament gets taped either on their bed rail or onto the wall so they can look at it. The "lucky" patients also have cards and pictures up on the walls, sometimes even a drawing scribbled on the dry erase board, which as a nurse, makes writing our own name up on a challenge at times. But we would never dream of erasing the "art," it's a nice tie to the real world.
On our floor, the patients sometimes get to know each other as they do thier laps around the unit, iv poles in tow. They talk about what cancer they got, they joke about racing each other, and how the gowns never quite cover everything. Sometimes they compare nurses, who is good, who is not. It's nice to see them bonding. During the holidays, most of the healthier ones have been sent home to be with thier families. It's the really sick ones who have to stay. We get to know their families, and kind of adopt them. Especially when the family has small kids. This year we are adopting a family that has a 4 year old daughter who also loves the little mermaid, and so we are all chipping in to buy her a little mermaid bike and bedroom set. It makes us all feel a little better that we can make her happy during this time. She does not know that this may very well be the last Christmas she has with him. I can't imagine how hard it must be for his wife too. Christmas shopping is not exactly a priority when your husband is fighting for his life in a hospital bed somewhere. (Justin says, :"hi")
We do what we can. Even though it is not really much. We don't count giving chemo, changing bedsheets and drawing labs as "something." That' s just work. We can see their future, even though we are not always right, in the end we usually are. It's tough with the family can't see where it is going. They think another bag of chemo, or another type of chemo is going to fix them. Sometimes it does, but most often it doesn't. It only makes the last days more dramatic. Especially with transplants. Even though sometimes the cancer is gone, our patients die ugly deaths. I don't think there is a way to show people what they may become. They don't know thier skin may turn to leather, that thier stomach may look like they are expecting twins, that thier feet will feel like lead and swell to 4 times what they once were. They do not know they won't even be able to take a sip of water and keep it down, even though the doctors tell them they may have nausea. How do you explain "gvhd" to someone? Your insides will slough off just does not compute. Mouthsores do not translate clearly enough to be understood as swallowing and breathing will be torture, like swallowing a mouthful of needles. It does not make sence that you will need 2 or more units of blood every day, even though you are not bleeding from anywhere. It is hard to understand why you have to take your iv pole with you into the shower. Or that the idea of just showering may as well take as much energy as planning a back packing trip to europe.
It's disheartening learning that, even after all that, the cancer has come back. I am thankful that I am not the one to have to tell them, but it does grip your stomach when you know the test results are not in thier favor, that the cancer has spread, that the chemo never worked, or that there is nothing else we can do. Holding that information back, waiting for the doctors to come in to break the news, acting is part of our job.
So we do what we can. Accentuate the positive. Nurses love giving the good news. Or at least I do. And, most importantly, it reminds us of how valuable our lives are, and how lucky we are to be able to eat that salad and sushi, to hop up out of our chairs when a patient needs us, and that we can walk out those doors to go home at the end of our shift.
Wednesday, November 22, 2006
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